Ep75: FPWR with Susan Hedstrom

I would imagine that most of us in the PWS world have now heard of FPWR – the Foundation for Prader-Willi Research. If you haven’t, this episode is a great start. I spoke with Executive Director, Susan Hedstrom, to learn more about FPWRs foundation, intention, and actions. I also learned how families can participate in clinical trials, creating a One Small Step fundraiser, and the importance of the Global Registry. If someone you love has PWS, I highly recommend learning more about FPWR and how you can help raise money and awareness. You can learn more about FPWR at fpwr.org.