Rare Disease Advocacy with Leah
You, The Mother - A podcast by Abbey Williams - Mondays
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This week on the Mimosas with Moms Podcast, Abbey welcomes Leah, parent advocate for rare diseases, epilepsy, and medically complex parenting struggles! To continue to bring awareness to Birth Defects Awareness Month, Abbey and Leah talk about Leah’s personal experience welcoming her son with a rare form of epilepsy and a rare disease. After a misdiagnoses nearly ending her sons life, Leah fought for proper care for her son. How has this experience changed Leah’s family and the course of her life? Let’s talk about it, CHEERS!! ——————————————— You can find Leah: IG @metabolic_mama Blog - metabolicmama.org FB /metabolicmamapde Email [email protected] Interested in learning more about rare disease legislative advocates? Visit: https://rareadvocates.org/about-us/ And to get involved, stay updated, donate and more! Visit: Bc it’s a program created BY every life https://everylifefoundation.org ——————————————— Instagram @mimosaswithmoms FB /mimosaswithmoms Email [email protected]
